Frequently Asked Questions

Why do I have to create an account and what does the app do with my data?

User accounts are only requested so that we can link your data to the unique identifier associated with your email address.  This way, if you ever reset your phone, change your phone, or switch to a tablet device, you can access your data as long as you use the same log in email. 

Currently, nothing is done to your data other than storing it, graphing it, and calculating percentages for insights. 

 

In the future, we do want to look at aggregate anonymous user information, so we can find patterns and publish insights like: "70% of Sjogren's Tracker users experience fatigue like you do."  We also hope that, to the extent possible, some of the aggregate statistics may be useful to the research community.  More details on how your information is stored and used can be found in our privacy policy.

2

Why do I have to customize my variables (symptoms, medications, aggravators etc.) ahead of time before seeing them on my daily entries under Add Data? 

This is so we can keep track of the same set of variables over time and they can be graphed on Trends.  In addition, when these variables are customized ahead of time, it allows us to make our daily entries faster.  We also think that having to make too many choices for daily entries can be overwhelming, so it's easier to simply select from a pre-determined set of variables.

Our goal is to make the process of documenting symptoms, medications, and other factors as quickly and painlessly as possible.  We know life can be busy and hectic, so we want to keep things as simple as possible.

3

I cannot subscribe to Premium Features.  What should I do?

Try going to the menu bar on the upper right corner and selecting Restore Subscription.  If that still doesn't work, please email us at contact@sjogrensdiary.com.  We are aware of a bug that is preventing some users from accessing Premium features and are working on finding a fix for it.  If you were charged for features you could not access, please let us know and we will reimburse you for the amount.  We apologize for the inconvenience and will try our best to correct this issue.

4

How does the App calculate the % of times an aggravator or food is associated with an increase in a symptom? (Premium users only)

For these calculations, the App first looks at the individual symptom ratings for any given day and see whether it has increased from the previous day.  If the symptom rating for x did increase compared to the previous day, then the App looks at the aggravators and foods selected for that day.  The App counts the number of days a particular aggravator or food was present while there was an increase in symptom x.  That number is then divided over the total number of days there was an increase in symptom x to derive the % calculation.  The App also looks at aggravators and foods selected on the day before an increase in symptom x, as sometimes our bodies take a while to react to certain environmental factors.  These % are also calculated and displayed.

Currently, these calculations are triggered once you've made at least 5 entries for a particular symptom.  The App publishes correlations with a threshold % above 40% and publishes the top 10 highest correlations for both aggravators and foods.

5

How are the Insights symptom % calculated?

The first section of Insights calculates the % of times you experience a particular symptom during a flare.  A flare is defined as 3 or more consecutive days for which you logged a symptom rating above 0.  We included this requirement for flares in order to exclude noise from one-off days that may not be associated with your chronic condition.  The total number of flare days will serve as the denominator for these % calculations.  Looking at only flare days, the app then counts the frequency that each symptom is checked off.  The days for which a particular symptom was present for a flare day will go into the numerator of the % calculations.

6

How is a flare determined by the App?

The App looks for consecutive entries where the overall symptom rating is above 0 or an individual symptom is selected.  Where there are 3 consecutive days of such an entry, the App considers that to be a flare.  In other words, if you record symptoms for 3 consecutive days, the App will document that as a flare for the statistics generated under Insights.

 

Let's Work Together

If you have any suggestions on what additional statistics we should include in Insights, please feel free to email us at contact@sjogrensdiary.com.